I feel like I've done this same post recently! But I need to write this down so I remember what happened when.
As you remember I had low platelets just before we left for Seattle. The doctors put me on prednisone (a nasty little drug that hates me) to raise my platelets. It did it's job and I got to slow go down in doses to get off the evil drug.
At 20mg my platelets were 196K. Awesome number!
At 10mg, my platelets were at 126K. Again...awesomeness!
Wednesday was my last day on prednisone. I got my blood drawn Monday evening. I expected my platelets to be low. (I didn't have much energy and I would bleed when I brushed my teeth for awhile.) I thought 30K. I even had a bet with a few people on what the number was.
We all lost.
It was 6K.
At 6K platelets, quite a lot of things can go wrong. I can just start bleeding in my brain or lungs or pretty much anywhere. This includes my uterus, where I am currently carrying a baby. Not good.
The doctor was NOT a fan to Krista because they woke him up at 2:30am to tell him I had 6K platelets. So when I showed up for my doctor's appt at 10am...he was on his 5th cup of coffee! and a tad grumpy. i don't blame him.
So from my appointment, I was shuffled into the chemo room and was given Solumedrol, which is a steroid that will make my body make platelets fast. Hopefully.
I got to leave after having had an IV put in my forearm, shoved with drugs and pretty much feeling way scared. I was told I was going to have to have a transfusion of platelets that afternoon and to wait by the phone to know when to come in.
(Living in Alamogordo, they have to fly platelets and IVIG and other expensive drugs in from ABQ. They just don't have the room or need to store them here. Well except for me.)
Well the nurse didn't order my platelets in time for me to get them Tuesday afternoon. (She got in HUGE trouble, I'm sure.) So they made me an appt for 7am to get a transfusion on platelets. Chris' work was so great and let him off a little early to come home and help with Bee. And so he could get up with me to sit while I got my platelets. I even got McD's breakfast burritos out of it!! YUM!
So Bee, Chris and I all went to the hospital for our early morning call and got to hang out for a bit. Then the chemo chairs started filling up and Chris had to move. Well we decided it would just be better for him and Bee to go home. They had given me Benadryl anyway, so after they left...I took a nap.
After i was done, 3 hours later, I had to walk to the doctor's office to see what the plan was for the rest of the day. If I needed more blood drawn or if I had an appointment. Well to my surprise, I got more steriods!! So I got to sit in another chair for 1.5 hours and get more drugs. Chris and Bee got to sit with me this time. It was in the doctor's office which is a lot more kid friendly.
Interestingly both of the chemo nurses are LDS! One is even in my ward. It's a small world here in Alamogordo!
Oh I have to mention that I got an IV in my forearm Tuesday. They left it in because they knew I was going to get platelets. So i slept with the stupid thing in, and even played with Bee...all with a needle in my arm. I get my platelets and tell them to take the thing out. Bad decision. Remember I go to the doctor's office and have to get more steroids. Well I have crappy veins for IV's. It took four times for the nurses to get one to work. And it was in my left hand. Oh it hurt so bad. I wanted to bawl my little eyes out. But I was a brave little toaster and didn't cry in front of my hubby and Bee.
So anyway I had a total freak out moment last night. I realized that I hadn't felt Baby move in quite some time. With all the medicines I had just gotten, this really freaked me out. I got out of bed and drink some pop, and ate something. Got nothing. I had Chris push on my belly, Baby usually moves for Chris. Nothing. i tossed and turned all night, trying and hoping to feel him. Chris reminded me that I had gotten a pretty big dose of Benadryl that day and Baby was probably sleeping it off. So I woke up this morning, still nothing....UNTIL I had some eggs. Then he started kicking me and I cried. I don't think I've ever been so excited to feel a baby kick me hard, as I was then.
So anyway we have some HUGE medical decisions to make in the next couple days about what we are going to do with my blood and what medicines to take and weighing the risks with the benefits.
So needless to say, I probably won't be on here. I'll be over at MD.com or something. Wave if you see me.
I promise I'll be back on here soon.
How are you guys?? I'm reading your blogs from my blackberry while I'm sitting, getting drugs. I just can't comment cuz they don't load right. But Hi!! I'm still reading you!